Non-profit patient organizations and medical specialty societies provide valuable real-world data that can facilitate academic research, educate through publications, and provide patient insights. This data can be leveraged to provide insights on the natural history of disease, study feasibility, epidemiological information on patient populations, and patient treatment patterns. Non-profits and specialty societies can also be real-world evidence partners for pharmaceutical and biotechnology companies to inform development and improve patient outcomes.
Source and Report: https://www.iqvia.com/-/media/iqvia/pdfs/us/fact-sheet/2023/expanding-opportunities-to-leverage-real-world-data.pdf