The National Institute on Aging has set aside $300 million in grant money to kick-start the development of a centralized Alzheimer’s disease research database.
The goal is to collect real-world data on Alzheimer’s disease in the United States, and create a platform that will serve as a central research hub, according to an NIA notice released last week. The project’s earliest potential start date is April 2024.
Key aims include improving the applicability and generalizability of future research results with larger more diverse datasets; providing more complete information by linking data sources; and increasing the speed of Alzheimer’s research.
Because data will be collected in the context of routine delivery of care, the dataset would also allow researchers to answer questions that can’t be answered via clinical trials, the NIA added.
Part of the NIA’s stated mission through 2025 includes understanding aging-related health disparities and developing ways to improve the health status of older adults in diverse populations, the NIA noted. The maximum project period is six years.
Source: https://www.mcknights.com/news/clinical-news/nia-set-to-build-300m-real-world-alzheimers-database/
CNN: https://www.cnn.com/2023/04/04/health/alzheimers-research-database/index.html
NIA Post: https://www.nia.nih.gov/research/blog/2023/04/transforming-alzheimers-research-real-world-data