Nationwide EHR-linked database of real-world patients aids rheumatologists

Not too long ago, Hauppauge, New York-based United Rheumatology had limited opportunities to directly capture the experience of patients across the country to answer important clinical questions.

THE PROBLEM

Although a given practice might capture data in its own electronic health record, even the largest of practices did not have enough patients to understand the real-world response to medicine or to capture the data from practices across the country as part of a value-based care initiative.

Other databases either did not capture information directly from the EHR, leading to risk of bias in which patients were captured, or had restrictive policies for data access.

PROPOSAL

“United Rheumatology Normalized Integrated Community Evidence allows for access to real-world evidence EHR data that can be analyzed to address specific research questions in the real-world community rheumatology setting,” explained Dr. Max Hamburger, founder, executive chairman and chief medical officer of United Rheumatology.

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